Campaign with us
Here are some ways you can campaign to make sure that people with profound and multiple learning disabilities (PMLD) are included, heard, considered, understood and get appropriate healthcare:
- Be the PMLD champion on your partnership board or advocacy forum.
- Help your partnership board or forum focus on the needs of people with
PMLD by:
- Helping people to understand who has PMLD by showing them the PMLD Network definition fact sheet - standard or easy read version.
- Show people the Meet the People CD-Rom.
- Give people copies of the PMLD Network leaflet so they know where to find out more.
- Invite someone with PMLD and their parent, carer or advocate to come to your meeting and tell you more about what matters to them.
- Ask your partnership board to follow the tips in our ‘Top Tips’ guide about including people with PMLD – many of the ideas above are in this guide
- Plan for the needs of people with PMLD by finding out how many people live in the area and doing an audit of their needs.
- Whenever you are making plans ask the question ‘How will this work for people with PMLD?’
- Tell us what you are doing! We need to share your good ideas with others.
Read the PMLD Network’s response to Valuing People Now for more details about the changes we are campaigning for.
Find out what the organisations which make up the PMLD Network are campaigning on by following the links to their websites.
