Resources
We have divided this section into the following topics. If you click on the section or topic you want you will go straight to the relevant resources. If you want to view all our resources you can just scroll down this page.
- Communication and behaviour
- Day opportunities and inclusion
- Advocacy
- Health
- Mental Capacity
- Moving and Handling
- Education
- Transition
- Person centred planning
- Arts and multi-sensory
- Other
Tell us what you think of our resources
1. Communication and behaviour
Publications:
- The Meet the People CD-Rom introduces you to 6 people with profound and multiple learning disabilities (PMLD)
- Foundation for People with Learning Disabilities (FPLD)’s Communication for Person Centred Planning information pack – this was designed to help staff, self advocates, families and friends to make communication better
- BILD factsheet on Communication
- BILD factsheet on Intensive Interaction
- Mencap factsheet on Multimedia Profiling
- Mencap factsheet on Consultation and people with PMLD
- Mencap's guide to communicating with people with profound and multiple learning disabilities
- Mencap response to Bercow Speech and Language Review – Call for Evidence
- A practical guide to intensive interaction by Nind M & Hewett D (2001) Kidderminster: BILD publications.
- See What I Mean: Guidelines to Aid Understanding of Communication by People with Severe and Profound Learning Disabilities by Grove N., Bunning K., Porter J., Morgan M. (2000). Kidderminster: BILD/Mencap.
- A voice of their own - a toolbox of ideas and information for non-instructed advocacy by Annie Lawton (2006)
- Creative Conversations (DVD) - Communicating with people with profound and multiple learning disabilities by Phoebe Caldwell with Pene Stevens.
- Communication Through Movement: Sherborne Developmental Method – Towards a Broadening Perspective by Cyndi Hall (2005)
- PMLD Journal articles on Communication and Behaviour - see page 5 of journal article list prepared by Sheridan Forster, 2008
Websites:
- Intensive Interaction - resources and training courses on Intensive Interaction
- Acting Up - multimedia profiling
- Information about Total communication
2. Day Opportunities and inclusion
Publications:
- Day opportunities that you have told us about - let us know about other day opportunities around the country that we can add to our list!
- PMLD Journal articles on Day opportunities and inclusion - see page 11 of journal article list prepared by Sheridan Forster, 2008
Websites:
- Changing Places campaign for toilets with a bench, hoist and plenty of space in public places
3. Advocacy
Publications:
- PMLD Journal articles on Advocacy - see page 2 of journal article list prepared by Sheridan Forster, 2008
Websites:
4. Health
Publications:
- Mencap’s Death by indifference report – standard and easy read versions
- Mencap’s Treat me right! Report – standard and easy read versions
- Health and learning disability networks list
- Mencap Evidence to Independent Inquiry into the Healthcare Needs of People with Learning Disabilities
- SeeAbility Evidence to Independent Inquiry into the Healthcare Needs of People with Learning Disabilities
- Eye Care for people with learning disabilities factsheets
- Sight loss in people with severe learning disabilities factsheet
- Hearing Care for people with learning disabilities factsheets
- Feedback from the optometrist about my test form – you will need to scroll down to the ‘Help with your eye test section’ to find this form
- DH (2002) Health action plans what are they? how do you get one? A booklet for people with learning disabilities - This booklet tells you more about Health Action Plans and how to get one.
- Including Me: managing complex health needs in schools and early years settings
- Information about postural care
- Everybody needs Toilets: an easy guide for people with a learning disability by Alice Bradley, Mary Buchanan, John Dawson and Agnes Forsyth
- Helping people with learning disabilities manage continence: a workbook for support workers and carers by Alice Bradley with Loretto Lambe
- Supporting continence management: a reader for managers by Alice Bradley with Loretto Lambe
- Transition to adulthood for young disabled people with ‘complex health and support needs’ - Joseph Rowntree Findings (1999). Full report by Jenny Morris.
- Transition: Getting it right for young people - Department of Health, Child Health and Maternity Services Branch (2006)
- An example Personal Health Profile is available from Oxleas NHS Trust
- An example health action plan (HAP) is available from Mencap
- PMLD Journal articles on Health - see page 16 of journal article list prepared by Sheridan Forster, 2008
- Young people's experiences of living with medical technology - research summary report. Dr Sue Kirk, the University of Manchester (2008)
- Living with Medical Technology - easy read version - Dr Sue Kirk, the University of Manchester (2008)
Websites:
- Look Up: information on eye care and vision for people with learning disabilities
- Look Up: information on hearing care for people with learning disabilities
- easyhealth.org.uk has lots of health information that is easy to understand.
- The Clear thoughts website has lots of clear information about mental health in learning disability
- Mencap’s Death by Indifference campaign
- To join the UK Health and Learning Disability Network log on and complete a joining form.
- The new Primary Care Contracting Framework: Managing of health for people with learning disabilities.
- UK postural care network
- Information about health and learning disability networks
- Access to Acute Care; Supporting People with a Learning Disability on Admission to Hospital - "A2A" (Access to Acute) interest group homepage – Resources available to download from this site
- What we are doing around health in Oxfordshire for people with a learning disability
5. Mental Capacity
Publications:
- Information Booklets on the Mental Capacity Act
- Best Interests guidance – The British Psychological Society
- PMLD Journal articles on Mental Capacity - see page 18 of journal article list prepared by Sheridan Forster, 2008
Websites:
- Mental Capacity Act
- Independent Mental Capacity Advocate (IMCA) service
- Office of the Public Guardian
6. Moving and Handling
Publications:
- The Guide to the Handling of People (5th Edition), Back Care 2005
- Health and Safety executive guidelines: Handling Home Care: Achieving Safe, Efficient and Positive Outcomes for Care workers and Clients Health and Safety Executive, 2002
7. Education
Publications:
- St Margaret’s School for pupils with profound and multiple learning disabilities (PMLD) – curriculum flyer
- A leaflet about education for students with Rett syndrome at St Margaret’s school
- Information about Carousel Days at St Margaret’s School: whole class multi-sensory experiences
- Including Me: managing complex health needs in schools and early years settings
- Special Educational Needs in England, January 2008 - Statistical First Release from the DCSF
- PMLD Journal articles on Education - see page 12 of journal article list prepared by Sheridan Forster, 2008
Websites:
8. Transition
Publications:
- Transition to adulthood for young disabled people with ‘complex health and support needs’ - Joseph Rowntree Findings (1999). Full report by Jenny Morris.
- Transition: Getting it right for young people - Department of Health, Child Health and Maternity Services Branch (2006)
9. Person Centred Planning (PCP)
Publications:
- Communication for Person Centred Planning – this information pack from the Foundation for People with Learning Disabilities is designed to help staff, self advocates, families and friends to make communication better
Websites:
- The Circles Network is a national voluntary organisation based around the key principles of inclusion and person centred planning approaches
- There is more information about person centred planning (PCP) from Helen Sanderson Associates
10. Arts and Multi-Sensory
Publications:
- Mencap's guide to the arts and people with profound and multiple learning disabilities (PMLD)
- Bag Books – Multi-sensory story packs. Devised for children and adults with complex needs, Bag Books provide sensory stimulation that helps to tell an accompanying story
- PMLD Journal articles on Art and multi-sensory - see page 3 of journal article list prepared by Sheridan Forster, 2008
Websites:
Tell us what you think of our resources
11. Other
Publications:
- PMLD Network definition of profound and multiple learning disabilities - standard and easy read versions
- PMLD Network leaflet - standard and easy read versions
- PMLD Network submission to Valuing People Now - full response, easy read, summary.
- PMLD Network submission to the Joint Committee on Human Rights (JCHR) inquiry into the human rights of adults with learning disabilities
- Valuing people with profound and multiple learning disabilities (PMLD), PMLD Network 2002
- Meet the People CD-Rom introduces you to 6 people with profound and multiple learning disabilities (PMLD).
- Mencap’s guidelines on gaining consent for showing images and video clips
- Valuing People: what has it meant for people with profound and multiple learning disabilities? by Rachel Fyson, Norah Fry Research Centre, University of Bristol - article in Focus Newsletter, May 2005, issue 42
- Rosengard A, Laing I, Ridley J & Hunter S (2007) A Literature Review on Multiple and Complex Needs - This review evaluates existing research to understand the processes through which people with multiple or complex needs engage, or do not engage, with services to resolve their problems and identifies good practice
- Inclusion Europe (2003) Inclusion of people with severe and profound intellectual disability. This brochure explains more about the needs of people with severe and profound intellectual disability. It wants to help organisations, self-advocates and parents to include them in their work.
- Joint Committee on Human Rights report: A life like any other? Human rights of adults with learning disabilities - standard and easy read
- People with profound and multiple learning disabilities: A review of research about their lives, Dr. Steven Carnaby (2004)
- Multimedia Technology for People with Profound and Multiple Impairment: An Evaluation of a Mencap Pilot Project Using Multimedia Profiling (2005)
- Mencap's factsheet on sexuality and people with profound and multiple learning disabilities (PMLD)
- List of PMLD Journal articles prepared by Sheridan Forster, 2008
Websites:
- PMLD Link
- British Journal of Learning Disabilities (BJLD)
- SLD Experience
- Information about inclusive technology which can support people to communicate can be found on the inclusive technology, Liberator and the CALL Centre websites
