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A list of what we are doing

Here is a list about what the PMLD Network is doing to ensure people with profound and multiple learning disabilities (PMLD) are included, heard, considered, understood and get appropriate healthcare:

A Right to be Included

  • The Changing Places Consortium is campaigning for Changing Places toilets - toilets with changing bench, hoist and plenty of space to installed in all big public places.
  • The Foundation for People with Learning Disabilities (FPLD)'s Life in the Community project will give people with learning disabilities who need a lot of support more opportunities to do exciting things.
  • BILD is working with advocacy organisations in the Midlands and the South East to develop links with people's local communities. The lessons learnt for people with PMLD will be shared.

A right to be heard

Sharing good practice about involving people with PMLD in decision making

Increasing advocacy provision

Working with family carers

  • The Foundation for People with Learning Disabilities (FPLD)'s Wellbeing project has highlighted key areas in which information and training for family carers and care staff could enable them to better support people with PMLD.
  • BILD's Quality Network involves people with PMLD and their families in reviewing the support they receive from service organisations as part of a process that looks at the outcomes of support on the quality of peoples' lives.

Explaining how the Mental Capacity Act can be used to support people with PMLD

A right to be considered

A right to be understood

A right to appropriate healthcare

  • Mencap's Death by Indifference campaign report has shown that people with a learning disability are not getting the healthcare and treatment that they need. It has triggered an Independent Inquiry.
  • The Foundation for People with Learning Disabilities (FPLD)'s Healthy Lives project aimed to improve people with learning disabilities health by incorporating and connecting person centred planning and health action planning into people's lives.

What you can do

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Resources and training

Latest news and events

Campaigning at Westminster

October 2008: Government report recommends Changing Places toilets

Read more news and events

Join the PMLD Network forum

For discussion and information about events