A right to be understood
People with profound and multiple learning disabilities (PMLD) sometimes find it difficult to communicate how they feel, partly because the people who support them often don’t have the right skills.
- We must challenge the negative assumptions about people with PMLD.
- We must help people better understand people with PMLD.
- We must make sure that any person working with people with PMLD gets the training they need to support them in every way.
Find out what we are doing
- Telling the government how children and young people with PMLD communicate so they can meet their needs.
- Mencap has produced a resource to help people understand the needs of people with PMLD. It is a CD-Rom called Meet the People.
- BILD provides website information, training and staff development to enable staff and families to understand and respond positively to people with PMLD who present challenging behaviour.
- Mencap has done a collaborative project with family carers in Lambeth, Lambeth Council, NHS Lambeth, Lambeth Mencap and ‘I Count’ Register Services, to explore the numbers and needs of people with PMLD in Lambeth. The report will help Lambeth to better plan for people with PMLD and there are a number of recommendations that will help other local areas.
Read the Lambeth PMLD report.
What you can do
Resources
Read our Communication and behaviour, Health and Other resources

