University of Kent specialist to review services for adults with profound and multiple intellectual disabilities

September 2009

The Department of Health has commissioned Professor Jim Mansell, Director of the Tizard Centre at the University of Kent, to carry out a review of services for adults with profound and multiple intellectual disabilities.

The intention is that the review will form the basis for policy guidance to local authorities and the National Health Service next year. Professor Mansell will be assisted by The Profound and Multiple Learning Disabilities (PMLD) Network, which includes families, professionals and voluntary organisations.

Professor Mansell explained: ‘There are thought to be about 28,000 adults with profound and multiple intellectual disabilities in England. They are among the most disabled people in our society. The government recognises that services and support for these people and their families are not improving fast enough. My review will look at what needs to be done.’

Beverley Dawkins, national officer for profound and multiple learning disabilities at UK learning disability charity Mencap and Chair of the Profound and Multiple Learning Disabilities (PMLD) Network, commented: ‘We welcome this announcement and the recognition by the government that improvements need to be made for people with profound and multiple learning disabilities. People with profound and multiple learning disabilities are among the most excluded and disadvantaged people in today's society and all too often their needs are ignored. The PMLD Network will be delighted to play a full part in the review.’

Anne Williams, National Director for Learning Disabilities, said: ‘We are committed to making sure that the benefits of Valuing People Now are experienced by those with the most complex needs. Professor Mansell’s work will set out what needs to be done to provide good quality services. I am sure it will be of great benefit to people with learning disabilities and their families.’

The Department of Health views improvements in services for people with profound intellectual and multiple disabilities as a major part of its learning disability strategy (Valuing People Now).